Keratoconus FAQs

Due to the COVID-19 outbreak, it is likely we have deferred your appointment. We are doing this to minimise the number of people having to travel to a clinic, as well as ensuring we are using NHS staff and resources wisely. A new appointment will be sent to you at a future date. We have produced the following frequently asked questions and answers to help you manage your condition in between appointments.

My cross-linking (CXL) has been cancelled. Should I worry?

No. Keratoconus is usually a very slowly progressive condition meaning that the vast majority will not suffer any significant visual loss in the medium term.

My keratoconus clinic appointment has been cancelled. Should I worry?

No. This is especially true if you have already had cross-linking, and if your vision is stable overall. Remember that fluctuations in vision in keratoconus are very common and no cause for concern. 

When will my appointment be rebooked?

We will be in touch in due course to rebook your appointment. Please avoid contacting us to confirm your new date as it will be sent to you as soon as possible.

I have been taking eye drops for my CXL. What should I do?

If you are on Opatanol, this can be taken indefinitely. If you are taking a steroid such as FML (Fluoromethalone), Prednisolone or Dexamethasone to take before your cross-linking, you should stop these drops now.

My eyes are very itchy and I’m rubbing them a lot. What should I do?

Itchy eyes are often a sign of allergy which can be alleviated by:

  1. Over the counter antihistamines as a first line - either tablets and/or eye drops such as Sodium Cromoglicate
  2. A cold compress over closed eyelids
  3. Lubricant eye drops kept in the fridge. A cold drop can provide almost instant relief.
  4. If the above fail, try prescription-only anti-allergy eye drops such as Opatanol which your GP can prescribe for you. 

My vision is changing. What should I do?

Fluctuations in vision are very common in keratoconus and not a cause for concern. Vision changes in keratoconus are usually very slow and any deterioration can be corrected by contact lenses in future.

Is treatment or follow up available privately?

Although we can’t answer this with certainty, it is unlikely during this COVID-19 crisis. Please carefully consider the above information before seeking private opinion.

What happens if my vision gets worse because I am not treated?

Don’t worry. Options to improve vision are available and will be offered discussed with to you at a future appointment if necessary.

I have had corneal cross-linking in the last year and my follow up appointment has been cancelled. Should I worry?

No. Corneal cross-linking is effective in over 98% of cases and post-operative scanning can be safely deferred.  We will be in touch to reschedule your appointment in due course.

Last updated: 27th March 2020